Welcome!

You are probably here because you or someone you love has recently been diagnosed with Henoch-Schönlein purpura.

If you are unfamiliar with HSP - as almost everyone is when they're first forced to experience it - we know all too well that it can seem frightening and confusing, even overwhelming. Information that seems to match your situation can be hard to find, and instructions about what to do next (even from trained physicians) can be maddeningly vague. So before we do anything else, let us reassure you right up front: TAKE IT EASY. HSP isn't cancer, it's not ALS - it's not even lupus. So just pause for a moment before we get into the nitty-gritty, take a deep breath and know that your child or your loved one is almost certainly going to be OK in the long run.

We're glad you found us, and we hope you find this site useful and informative. Although Henoch-Schönlein purpura is the most common form of childhood vasculitis, we - like you, probably - had never even heard of it before our daughter was diagnosed shortly after her seventh birthday in March 2008. As we began to realize that this was going to be more significant than the standard colds, ear infections, and low-grade fevers that all kids get, we turned to the Internet for information.

There were many sites that had information, but most of them seemed to minimize the significance of the disorder. "Self-resolving within 4-6 weeks" they all said, somewhat dismissively. Worse, none of the sites we were able to find were written from a parental or layman's perspective with an eye towards sharing community information amongst HSP patients and their parents/families. As our case continued its dramatic roller coaster road with multiple hospitalizations (seven as of this writing), we began to look for support from the parent perspective. And we came up mostly empty. So we decided to build this site in the hopes that others might find it if they needed it.

However, (and we hate to do this to you the very first time you're here) we’d like you to read, understand and (where appropriate) agree to a few brief items.

Continue on to Terms & Conditions